Patient & Caregiver Resources/Guides
Innovate. Advocate. Collaborate.
A Word for Caregivers
Navigating end-of-life care can be an honor and a blessing, but it can also be challenging for patients, caregivers, and loved ones. With that in mind, we design advanced illness best practice resources for patients and their caregivers. Our goal at NPHI is to make the caregiving process as informative and stress-free as possible.
Check out our FREE resources
All of our guides were put together with the collective expertise of over 100+ end-of-life care providers across the nation. With input from clinical teams led by NPHI’s Chief Innovation Officer, Dr. Cameron Muir, our Patient and Caregiver Guides are designed to add ease to the caregiver experience.
Navigate to our free Patient and Caregiver resources by clicking on each guide below.
Relief From Common Symptoms
Taking Care of You
Caregivers provide support to someone who needs help. It doesn’t matter how many hours per week are spent providing support. Caring for a family member or friend is not easy, nor is it something most of us are prepared to do. Learning about being a caregiver may help you provide the care your friend or loved one needs.
The Alzheimer’s Association leads the way to end Alzheimer’s and all other dementia. Learn the 10 early signs and symptoms of Alzheimer’s. If you or someone you know is experiencing any of the signs, please see a doctor. Early diagnosis gives you a chance to seek treatment and plan for the future.
Area Agencies on Aging (AAA) address the needs and concerns of seniors, persons with disabilities, and family caregivers at the regional or local level. They have access to information and services that promote physical health, mental well-being, and options for living that ensure personal dignity and individual choice.
Seven in ten Americans will need home care at some point due to disability or the simple process of getting older. Caring Across Generations is building a national movement of the “caring majority” by addressing four major program areas: culture change work; local, state and federal policy advocacy; online campaigning; and field activities and civic engagement.
The Eldercare Locator is a public service of the Administration on Aging, U.S. Department of Health and Human Services. It is a nationwide service that connects older Americans and their caregivers with information on senior services.
The Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care for loved ones at home. It strives to illuminate the caregivers’ daily challenges to better the lives of caregivers nationally, provide them the assistance they need and deserve, and champion their cause through education, services, research and advocacy.
The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association’s purposes are charitable, educational, and scientific.
A non-profit coalition of national organizations focused on improving the lives of family caregivers, the National Alliance for Caregiving was created to foster research, conduct policy analysis, develop national programs, and increase public awareness of family caregiving issues. It is dedicated to improving quality of life for families and their care recipients through research, innovation, and advocacy.
Sadly, senior citizens are especially susceptible to alcohol and drug abuse. In fact, according to the Institute of Medicine, 1 in 5 people 65 or older have one or more mental health or substance abuse conditions. The Ultimate Guide to Addiction Treatment for Seniors with Medicare provides seniors treatment options.
ReACT is an employer-focused coalition seeking to create a supportive business environment where the challenges faced by caregivers juggling the demands of both work and caregiving for an adult with a chronic age-related disease are understood and recognized by employers so that employees can better meet their personal and professional responsibilities.
The Caregiver Space is a non-profit dedicated to providing a supportive online space where caregivers can share their stories, tap into resources and learn from the real experts: other caregivers. They can tap into their community to get comfort, share stories, and find solutions at any hour of the day or night.
Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers. Caregiver.com includes topic specific newsletters, online discussion lists, back issue articles of Today’s Caregiver magazine, chat rooms and an online store; all developed for caregivers, about caregivers and by caregivers.
This site provides information on services available to the family caregivers of a veteran. The US Department of Veterans Affairs (VA) values the caregiver’s commitment as a partner in their pledge to care for those who have “borne the battle,” and they have several support and service options designed with caregivers in mind. The programs are available both in and out of the home and help care for both the Veteran and the caregiver.